Et menneske med funktionsnedsættelse og eller handicap,
er egentlig ikke et menneske med særlige behov,
men blot et menneske med helt almindelige behov,
som kræver særlige løsninger...
Support. Research. Hope.
The mission of the Families of SMA Denmark Forrening is:
To fund the best possible research in search of a treatment or cure for Spinal Muscular Atrophy.
To support Danish and Europeian families and individuals affected by Spinal Muscular Atrophy in every province and territory.
To offer hope by helping families realize they are not alone with the diagnosis of SMA. We understand, because we too are parents of children born with Spinal Muscular Atrophy.
To achieve our mission, we undertake the following actions:
To work closely with Families of SMA (PL) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies. (research)
To supply information about SMA to any Dane requesting it.(support)
To support Danish and European families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes. (support and hope)
To offer support for activities that bring families and individuals together mutually benefitting all that are involved (for example, the annual FSMA conference, SMA Family Camp, Parent’s retreat)(support and hope)
To support individuals with their fundraising activities benefitting Familie SMA Denmark. (research and support)
To supply members with newsletters from both FSMA.DK and FSMA.PL (EU) (support and hope)
To connect families to each other through various methods including our website, through our head office, through our newsletter and group activities. (support and hope)
If you are interested in holding a fundraising event for FSMA.DK, please email Us for advice and assistance. We have materials and information to assist.