Et menneske med funktionsnedsættelse og eller handicap,

er egentlig ikke et menneske med særlige behov,


men blot et menneske med helt almindelige behov,

som kræver særlige løsninger...


Familie SMA Denmark


FamilieSMA Denmark will suppor leading scientists and policymakers to create treatments and a cure for spinal muscular atrophy (SMA).


FamilieSMA Denmark has been active in the SCANDINAVIA and is more optimistic than ever before.


SMA has been chosen by the National Institutes of Health to be a model for translational research because it is the closest to a treatment or cure out of all known neurological disorders.


Still, spinal muscular atrophy remains the most common genetic cause of death for young children. Research in SMA also creates invaluable scientific insight for countless other diseases, like ALS, Alzheimer's, Parkinson's, the muscular dystrophies, some forms of cancer and even spinal cord injury.


Our Purpose


FamilieSMA Denmark's mission is to strategically accelerate the search for treatments and a cure for spinal muscular atrophy. The organization achieves this objective by raising awareness and funding for SMA families & research.


Our Funding


FamilieSMA Denmark is a tax-exempt nonprofit organization. It relies solely on charitable contributions to equip its innovative research and advocacy programs.

FamilieSMA Denmark is fueled by the generosity of individuals from around the globe, through donations made to the organization and fundraiser events. FamilieSMA Denmark also receives funding through annual corporate sponsorships and grant partnerships with other supportive groups.


Please note that FamilieSMA Denmark does not receive any state or grovement funding form any authorities.



Familie SMA Denmark





CONTACT: info@fsma.dk


Roskildevej 342B

2630 Taastrup



Konto: Arbejdernes Landsbank

5331 0249201



Policy Statement of the Familie SMA Denmark Forening


The Familie SMA Denmark has been formed by people with a common interest in the improvement of the lives of persons with Spinal Muscular Atrophy.



It is for this reason that we welcome ideas from other parents and guest writers on educational advances, various therapies, etc. that individuals have investigated and / or found beneficial.


This exchange of ideas is more than welcome.



Parents and others then are given the opportunity to decide if they want to investigate these for themselves.



The Familie SMA Denmark does not, as an organization, support or endorse any particular treatment or therapy.



Information contained in the FSMA.DK Web Site is for informational and educational purposes only.


All medical information presented should be discussed with a qualified physician.



FSMA.DK reserves the right to remove any objectionable postings to our message and blog areas, without notice to the poster.


Any hypertext link contained in the FSMA Web Site is provided for convenience only.



FSMA.DK possesses no control whatsoever over such links or any sites linked thereby, and makes no endorsement of any kind regarding any linked site.



Copyright Information


Unless otherwise indicated, all information contained in the FSMA.DK web site is copyrighted by and proprietary to FSMA.DK, and may not be reproduced, published, transmitted or distributed in any manner without the prior express, written consent of FSMA.DK, although you may download one (1) copy of the information contained in the FSMA.DK web site for Your OWN personal, non-commercial use.


Materials available in PDF format may be reproduced but only without modification.


Our Website is funded by donations.


Our Website does not host any form of advertisement.



FSMA.DK may modify this Policy Statement, or any other information


contained in the FSMA.DK Web Site, at any time without notice,


and it is your responsibility to apprise yourself of the most current disclaimer/information.



Last Updated: 18 August 2016