Et menneske med funktionsnedsættelse og eller handicap,
er egentlig ikke et menneske med særlige behov,
men blot et menneske med helt almindelige behov,
som kræver særlige løsninger...
Familie SMA Denmark
FamilieSMA Denmark will suppor leading scientists and policymakers to create treatments and a cure for spinal muscular atrophy (SMA).
FamilieSMA Denmark has been active in the SCANDINAVIA and is more optimistic than ever before.
SMA has been chosen by the National Institutes of Health to be a model for translational research because it is the closest to a treatment or cure out of all known neurological disorders.
Still, spinal muscular atrophy remains the most common genetic cause of death for young children. Research in SMA also creates invaluable scientific insight for countless other diseases, like ALS, Alzheimer's, Parkinson's, the muscular dystrophies, some forms of cancer and even spinal cord injury.
FamilieSMA Denmark's mission is to strategically accelerate the search for treatments and a cure for spinal muscular atrophy. The organization achieves this objective by raising awareness and funding for SMA families & research.
FamilieSMA Denmark is a tax-exempt nonprofit organization. It relies solely on charitable contributions to equip its innovative research and advocacy programs.
FamilieSMA Denmark is fueled by the generosity of individuals from around the globe, through donations made to the organization and fundraiser events. FamilieSMA Denmark also receives funding through annual corporate sponsorships and grant partnerships with other supportive groups.
Please note that FamilieSMA Denmark does not receive any state or grovement funding form any authorities.
Familie SMA Denmark
Konto: Arbejdernes Landsbank
Policy Statement of the Familie SMA Denmark Forening
The Familie SMA Denmark has been formed by people with a common interest in the improvement of the lives of persons with Spinal Muscular Atrophy.
It is for this reason that we welcome ideas from other parents and guest writers on educational advances, various therapies, etc. that individuals have investigated and / or found beneficial.
This exchange of ideas is more than welcome.
Parents and others then are given the opportunity to decide if they want to investigate these for themselves.
The Familie SMA Denmark does not, as an organization, support or endorse any particular treatment or therapy.
Information contained in the FSMA.DK Web Site is for informational and educational purposes only.
All medical information presented should be discussed with a qualified physician.
FSMA.DK reserves the right to remove any objectionable postings to our message and blog areas, without notice to the poster.
Any hypertext link contained in the FSMA Web Site is provided for convenience only.
FSMA.DK possesses no control whatsoever over such links or any sites linked thereby, and makes no endorsement of any kind regarding any linked site.
Unless otherwise indicated, all information contained in the FSMA.DK web site is copyrighted by and proprietary to FSMA.DK, and may not be reproduced, published, transmitted or distributed in any manner without the prior express, written consent of FSMA.DK, although you may download one (1) copy of the information contained in the FSMA.DK web site for Your OWN personal, non-commercial use.
Materials available in PDF format may be reproduced but only without modification.
Our Website is funded by donations.
Our Website does not host any form of advertisement.
FSMA.DK may modify this Policy Statement, or any other information
contained in the FSMA.DK Web Site, at any time without notice,
and it is your responsibility to apprise yourself of the most current disclaimer/information.
Last Updated: 18 August 2016