Nyheder

Et menneske med funktionsnedsættelse og eller handicap,

er egentlig ikke et menneske med særlige behov,

 

men blot et menneske med helt almindelige behov,

som kræver særlige løsninger...

Familie SMA Denmark

FamilieSMA Denmark will supports leading scientists and policymakers to create treatments and a cure for spinal muscular atrophy (SMA). FamilieSMA Denmark has been active in the SCANDINAVIA and is more optimistic than ever before.

 

SMA has been chosen by the National Institutes of Health to be a model for translational research because it is the closest to a treatment or cure out of all known neurological disorders.

 

Still, spinal muscular atrophy remains the most common genetic cause of death for young children.

 

Research in SMA also creates invaluable scientific insight for countless other diseases, like ALS, Alzheimer's, Parkinson's, the muscular dystrophies, some forms of cancer and even spinal cord injury.

 

Our Purpose

 

FamilieSMA Denmark's mission is to strategically accelerate the search for treatments and a cure for spinal muscular atrophy. The organization achieves this objective by raising awareness and funding for SMA families & research.

 

Our Funding

 

FamilieSMA Denmark is a tax-exempt nonprofit organization. It relies solely on charitable contributions to equip its innovative research and advocacy programs.Familie SMA Denmark is fueled by the generosity of individuals from around the globe, through donations made to the organization and fundraiser events. Familie SMA Denmark also receives funding through annual corporate sponsorships and grant partnerships with other supportive groups.

 

Please note that Familie SMA Denmark does not receive any state or grovement funding form any authorities.

 

 
 
 

 

 

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